Well, we left Rhys yesterday afternoon with a MAP of 13 and oxygen in the 60s. A follow-up blood gas was due around 7pm, to see how he was handling all the tweaking. I was sure I'd walk in this morning to cranked up settings, but to my complete amazement they are the same! He was able to adequately maintain his levels with the lower oscillator settings through the night and the doctors bumped down his MAP again to 12 right after I got here. They are going to see how he handles this today and if all goes well they will try the conventional vent again tomorrow. Wow! I am hopeful this gradual lowering of settings will work for him, as compared to the drastic changes he previously hasn't done well with. The PDA is still on hold as long as we aren't going the other direction. He will still continue to get echos to make sure his heart is functioning properly, but they will not close the PDA unless it becomes their only option again.
His feeds are at 5cc now, so slow progress, but progress nonetheless. He did really well on the feeds before so I am hoping that continues and he can put on some significant weight. Speaking of weight, it is funny to hear all the nurses tell us how big he's gotten. Yes, relative to when he was born he is almost twice as big, and now looks like a tiny newborn. But at 2.5 pounds he is still smaller than most baby dolls. :o)
6 comments:
What wonderful news! It's hard to believe he is already 6 weeks old. He is a fighter and true testament to how resilient babies are! We are continuously praying that Rhys is able to quickly get back to the traditional vent. With each small victory we continue to thank God for His blessings! Josh and I pray daily that God continue to give you and Cody the strength and courage to be the amazing parents that you are. We pray that God shoulder your worries and give you both peace of mind and spirit. We love you both and look forward to seeing you soon.
Love, Josh, Crystal & Colton
O Christ Jesus,
when all is darkness
and we feel our weakness and helplessness,
give us the sense of Your presence,
Your love, and Your strength.
Help us to have perfect trust
in Your protecting love
and strengthening power,
so that nothing may frighten or worry us,
for, living close to You,
we shall see Your hand,
Your purpose, Your will through all things.
Amen.
ANY step, no matter how small, is an answered prayer! I am so excited he's progressing...and I can't wait to see him again...need to talk to you to plan my next visit with the little man - I know at this point there's probably a waiting list of friends/family who want to visit him, haha!
If Bernie and I wait any longer to see him, Rhys will already be home with his momma! haha! He's such a fighter and we both can't wait to meet him! :)
SO glad to see that lil Rhys is progressing!!!
Yay Rhys!! Happy birthday!! We all love you very much!!
C&C - I know the anxiety of this road is very burdensome. I'm going to share something that a special person gave to me and I kept it in my purse for the longest.
Phil 4:5-9.
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Finally, brothers, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable - if anything is excellent or praiseworthy - think about such things. Whatever you have learned or received or heard from me, or seen in me - put it into practice. And the God of peace will be with you.
Rhys is true, noble, right, pure, lovely, and admirable.....so as Jesus said, think about such things.
Love ya'll. I'm not usually one to write such things but this really does ring true and it really did help me.
Amy
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