Little man took two years off my life span today (and gave daddy a few more gray hairs). The doctor called this morning to get permission to give him steroids because he was on 100% oxygen and his stats were falling. You know it's not good news when the doctor personally calls you. Cody and I rushed to the hospital thinking the worst, but once we got here we were able to get the rest of the story. He was doing poorly, but the doctor said he'd been sicker (i.e. early last week). The steroids will hopefully help reduce the inflammation in his lungs so they are less stiff and can open and oxygenate him better. Since we've been here they've been able to decrease his oscillator settings a little (better than the previous two days where they kept going up) and his O2 saturation has been in the mid 90s so they have been able to wean him down a bit on the oxygen. They also gave him one dose of the paralytic this morning to help get his stats up, but that is mostly worn off now. He is still sedated to keep him relaxed, but he is moving and checking things out. They have also started him on another round of antibiotics in case this behavior is a reaction to an infection. Please help us pray that Rhys keeps responding to the treatments he is given, mainly that the steroid works and will make his little lungs stronger.
8 comments:
tiny, tiny steps. Praying every single day with you. I hear the exhaustion and desparation in your voice. How I wish I could just help you take some deep, deep breaths. I wish I could comfort you till you fall assleep. I wish you a few good hours of stable emotions.I would give this to you, and so much more if I could.
I am not able, but God is. This is my prayer for you Cody and Candice. i love you
I prayed this morning really hard for God to breath for him. Love the picture with his eyes open. Enjoyed seeing him yesterday and today! What a treat!
Amy
Oh he has such cute little eyes! It's exciting to see them open! Now we just want him to get off that oscillator!
Mary Anne
Candice and Cody - I cannot imagine how exhausted both physically & mentally you both must be. I pray for healing for Rhys from the top of his head to the bottoms of his feet and also for peace of mind for you both so that you are able to rest. The new pictures of him with his eyes open are beautiful! He is a handsome little man. The world is his to see! We love you both and you are in our minds and on our hearts constantly. We feel so helpless, but want you to know that our prayers and support are here always. We will be in Houston Saturday and would like to come by and say hello if we can. Stay strong - I know you both have already been told over and over what amazing parents you are, but I will tell you again - your strength, courage & faith is an inspiration to all of us. Love,
Josh, Crystal & Colton Myers
Lord, look upon Rhys with the eyes of Your mercy, may Your healing hand rest upon him, may Your life-giving powers flow into every cell of his body and into the depths of his soul, cleansing, purifying, restoring him to wholeness and strength for service in your Kingdom, Amen.
I hope I'm not intruding and you can take some small comfort in the fact my daughter was facing almost the same situation and a steroid (dexa for short) was given at one month and helped almost immediately. I wish your son the same success and we are pulling/prayinh for you.
I'm so amazed by so many good and kind people who keep little Rhys in their prayers or just reach out because they have similar experiences. As a great aunt to this precious baby I just want to say how much I appreciate knowing this. Cody & Candice (Codice, as Suzanne calls you :)) just take comfort in knowing that you all have been lifted up by so many people, even ones that we'll probably never know about. Keep fighting Baby Rhys... We love you...
Oh, he's so beautiful! I love seeing those eyes open!
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