Monday, September 8, 2008

More Progress


We call this his superman pose. He raises his hands above his head a lot
when he sleeps. It's really cute when he is so relaxed.
Rhys has had an amazing couple of days. So good it's almost scary - like it's TOO good. Hopefully you enjoyed the 30 minutes worth of bath time. :o) Cody was very excited to post the clips. The best part? Lotion! He was in desperate need of a little lotion on his crusties and he's looking much better.

Rhys is still tolerating his feeds very well and he is up to 23cc every three hours. In addition to the caloric additive his milk is now being fortified with phosphorous and calcium for his bones. Does anyone notice anything different about little man's arms? Anyone?? To those who answered "he has no IVs" you are paying attention! They removed the IV used for the blood transfusion, but that's not such a big deal. The big news is that he no longer has a PICC line. He lost his two remaining med pumps for the versed and morphine yesterday so they were able to remove his PICC line. At one time he had 8 meds going into the PICC line so this is amazing, NO PUMPS! This eliminates a source of infection, and we're happy he no longer needs it. His O2 today has ranged from 40% when I got here to about 65% after his vitals were taken and diaper was changed. The vent rate is down to 34bpm (wow!) and the pressure remains the same. I was told they are going to try alternating between lowering the pressure and rate settings a couple of times a week. We're very excited at his progress and hope he keeps it up. Please continue to pray for little man to stay strong and keep making forward progress.

11 comments:

courtney said...

Hey guys! I am sooo glad to see that Rhys is doing better. Not to mention that I am glad I got to come by and visit with him saturday. He is so precious.

Mary G said...

Such wonderful news made me teary-eyed...and in a GOOD way!!! All of you have been incredibly tough and I am so glad you are seeing such progress. The prayers are working and we will keep them coming. Love and hugs go out to all three of you from the Goodwin bunch. Take care & we hope to see you soon!

suzanne said...

Wonderful, wonderful news!!! You got to play with your baby...a banner day. I especially love the aggie bear and his yellow belt. Clever, clever, clever. He looks like a baby!!!! Keep the faith and take care of yourselves and especially each other. Blessings and I am so glad you all are having good days.

Jodi said...

Keep it up, sweet boy! I'm so glad that his bpm was decreased. I remember being so excited about days with so much progress. He's looking great.

amyoutlaw said...

That's super AWESOME!!! He's looking soooooo good. See ya'll tomorrow.
Amy

Angie and Jason said...

I love to hear such great news. He is the fighter we all have talked about for many many days now! I just love how sweet these pictures and photo clips are. Like Mary said, teary-eyed for sure. All of you are amazing. I can't wait to see you guys tomorrow! :) He is so cute.
Hugs for all of you!
The Grisel's

Anonymous said...

I was so excited to read the words "More Progress". I even did a little jig in my office! Keep it up Rhys. I'm praying for you little man and for you mommy and daddy!

Unknown said...

Pretty soon he will be needing a new belt! I am so happy for you all and will continue to pray!

- Kristin

Crystal M said...

I was so excited to see no IVs that I made Josh come inside yesterday to see it for himself! We are both so happy for you. This prayer warrior will pray for continued forward progress! Mary said it best - I was teary and beaming for you all yesterday as well. I do believe a color change for his belt is in the very near future! Love you guys!
The Myers Gang

Anonymous said...

Awesome!!! Little Man is handling his business quite nicely!

Chunky Mama said...

He's such a show off, haha! I am so happy!!! Just one more step towards coming home!!!!